Women's Cancer Information Center: View Bulletin Board

Women's Cancer Information Center: Bulletin Board

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My sister was also diagnosed with the same kind of cancer, since May 2003 she has undergone surgery, radiotherapies -internal and external - this has been very diffiukt for her,
please let me know if you have heard of any other type of cure besides the one she has gone through.
Thanks
I shall keep you informed, my sister is strictly following dietary guidelines.

Regards and my prayers are with everyone.

Arvinda

AM - VA
Tuesday, November 11, 2003 at 11:27 (EST)

To Everyone:

On January 1, 1980, my grandmother passed away. She had a strong will and was an unique women, and I loved with all my heart. Grandma had breast cancer - she didn't die directly from that - but, her fight against it inspired me to fight against breast cancer.

On November 7th - I am participating in the Breast Cancer 3 Day in San Francisco. To participate, go to www.breastcancer3day.org. Click on San Francisco. If you can't walk but would like to sponsor me, email me at the address above.
Thank-you! I truly believe if everyone gave just $20 to fund breast cancer research we will find a cure for this!
Thank-you! ~Bev

Bev - Seattle, WA
Monday, October 06, 2003 at 01:59 (EDT)

Hello Diane,
I was also diagnosed with MMMT or uternine carcinoma sarcoma October 31, 2002, I had a total hysterectomy 11/11/02. Grade 1C and the tumor rate at 3 or 3. I had 28 external radiation treatments and 3 HRD internal radiation treatments. I have recently developed another tumor near my urethra and I have 2 nodules in my right lung. Tomorrow I'm seeing my oncologist about results of biopsy and treatment plan.
This type of cancer is very hard to find info on. I have found some clinical studies, not to encouraging. UCLA has an ongoing clinical study now. Please email me directly by clicking on the link above...
Bye for now

Marga - Santa Fe, NM
Monday, September 15, 2003 at 00:38 (EDT)

This is in answer to Lisa Z-Oakley Calif.
My mom has MMMT Cancer. Going for her first chemo treatment today.

Diane - NewYork
Monday, July 21, 2003 at 16:07 (EDT)

On March 28th, 2003, I was diagnosed with uterine carcinoma/sarcoma, the homologous type or MMMT=Malignant, Mixed, Mullerian Tumor. On April 28th, I had a total hysterectomy and have been advised to begin radiation therapy by the tumor board. They say I was only at stage one, but apparently my slides were extremely poory differentiated giving me a C plus grade. Does anyone out there know anything about this very rare form of cancer and if so, please email me at this address. I am going for a second opinion at the end of June in San Francisco, but am having issues finding someone else out there who has had this particular form of cancer.

Lisa Z - Oakley, Calif.
Thursday, May 29, 2003 at 20:45 (EDT)

I was diagnosed with fallopian tube cancer after surgery in August 2002 while being treated at the City of Hope Medical center in Duarte, Ca. After surgery I was treated with 6 chemo-therapy infusions every 3 weeks, of Taxol and carboplatin. My CA 125 continued to decline, however, very slowly and just last week was at 246. My cat scan also completed 1-14-03 showed two tumors sized at 4 and 3 centimeters right near my rectum. According to the Drs. these grew to this size during my chemo, which to me is baffling. Anyone out there experienced with fallopian tube cancer? Would appreciate any and all comments. Sandy

S. L. L. - Tulare, Ca
Friday, January 17, 2003 at 16:31 (EST)

ATTN. anyone who can help in any way
There is a beautiful sweet young woman that needs a helping hand. She is 26 and had one ovary removed close to two years ago due to a dermoid tumor and she has never recovered, if anything, only gotten worse. The doctors she's seen can't seem to be able to tell her anything. They keep taking ultrasounds and wild guesses. They tell her to come back in another month, meanwhile she's in a world of hurt and slowly just giving up. To make matters worse they have spotted another abnormality on her remaining ovary and can't seem to say what it is. She is ready to have a hysterectomy because she is very concerned about her overall health and doesn't see the doctors really doing what they need to do to help her and I think she feels she's out of options. She has far to much love in her heart for her not to be able to share that with a child someday, IF that's a possibility.
Please help THANK YOU

Mark MacMillan - Los Osos Ca.
Thursday, September 19, 2002 at 17:55 (EDT)

I have always been a little uncomfortable with books that have titles that imply a patient can beat cancer by altering diet or lifestyle or by just thinking positively. Patients need weapons, and they need hope and they need to feel they are in control. That said, I have personally known so many determined and courageous women who were determined to survive, did all the right things, and lost anyway. They not only had to deal with dying, a common thread in our discussions was that they ended up feeling like they must have done something wrong, hadn't fought hard enough, etc. It just seems like they have enough on their plates!

Heather - Idaho
Sunday, August 04, 2002 at 04:13 (EDT)

I had abnormal pap smear results and got really scared. I found info at http://www.obgyn.uic.edu/onc/papsmear.htm and a friend of mine reassured me that even if the results were precancerous, the early detection has made cure rates really high. Everyone should make sure they do their annual exams.

Denise Jenson - CT
Wednesday, January 09, 2002 at 13:59 (EST)

I've been checking this site out, it's really got a ton of stuff on it. But I wondered what time the chats will be, and if I'll be able to ask any questions I want, or do I have to stay on the topic?

Karen Danson - Syracuse, NY
Friday, November 30, 2001 at 17:04 (EST)

Are you a cancer advocate?

Are you involved in the cancer experience and are a cancer survivor or a person affected by the suffering and consequences of cancer?

Do you know someone who is an experienced cancer advocate and is looking to get involved?

The National Cancer Institute is seeking qualified candidates for 5 open positions on the Director’s Consumer Liaison Group (DCLG). The DCLG advises and makes recommendations to the Director of the NCI. The DCLG is a federally chartered advisory committee of 15 cancer advocates.
ELIGIBILITY
A DCLG member must

Be involved in the cancer experience: as a cancer survivor, a person affected by the suffering and consequences of cancer, or a professional / volunteer who works with survivors or those affected.
Represent a constituency (either formally or informally) with whom s/he communicates regularly on cancer issues and serves as a conduit for information between the NCI and that constituency.

SKILLS
Applicants must be able to demonstrate:

Cancer advocacy experience
Leadership skills
The ability to:
Think globally
Contribute as an effective group member
Communicate clearly

CHARACTERISTICS OF THE DCLG
The DCLG membership reflects the breadth and diversity of the consumer advocacy community with respect to:

Ethnicity and Culture
Cancer Type
Gender
Age
Geographic area, including rural and underserved populations
Cancer-related Organization

To request an application package, please click below (or cut and paste the address into your web browser):
http://www.cancer.gov/partners/liaisonrequest.html

To learn more about the DCLG please visit the websites below:
http://www.cancer.gov/partners/2000_nominations.html

http://deainfo.nci.nih.gov/ADVISORY/dclg/dclg.htm test
Wednesday, November 21, 2001 at 14:42 (EST)
Liaison Activities, National Cancer Institute NCI

I wrote two breast cancer related pieces.
Breast Cancer New Hope - http://www.writtenbyme.com/content/52790

Breast Cancer Awareness Month Revisited - http://www.writtenbyme.com/content/65424

Thursday, October 11, 2001 at 21:32 (EDT)
Lynda Appell - US

If you are interested in supporting breast cancer research, there is a new company called Capri that has recently formed a partnership with the Dana Farber Cancer Institute. They make toilet paper, napkins, and paper towels. For each package you buy, they will donate $.50 to breast cancer research. On the package, it says they will donate a minimum of $375,000.

I think this is a great effort on their part to support breast cancer research. I called the company, and they have products in Shawąs, Stop & Shop, A & P, and Brooks, mostly in the New England area. We can make a big difference, if we all buy just one package of these products, which we would be buying anyway, there will be thousands of dollars going toward valuable research.

Please spread the word!

Best Wishes,

G. Beach - MA
Wednesday, September 19, 2001 at 08:12

According to the results of studies published in mainstream medical journals, incl uding the Journal of the National Cancer Institute, there is a positive correlatio n between the carcinogens in certain cosmetics and breast cancer. Some cosmetic ca rcinogens were associated with aggressive and fatal breast cancer.

For more information on this subject, please visit our Web site at: www.CancerRese archAmerica.org

Thanks,
Dr. James Coleman

Tuesday, May 15, 2001 at 06:03 (CDT)
Dr. James Coleman - Louisville, KY USA